Welcome to Huntington's New South Wales

Upcoming Events

2 HUGE RAFFLES

Hunter Biker’s Raffle

Hunter Biker's raffle   Win this Bike!

  Kawasaki Vulcan 1700 Vaquero valued at $24,499

Kawasaki Vulcan 1700 Vaquero
Purchase tickets on-line, at info@huntingtonsnsw.org.au or 9874 9777.


Hunter Valley Art & Wine Extravaganza

Hunter Valley Art & Wine ExtravaganzaFour Fabulous Prizes to Win
1. Original artwork by Tanya Loviz
2. Hunter Wine Experience
3. Horse & Carriage Winery Tour
4. 6 bottles Premium Hunter wine

 

Purchase tickets at info@huntingtonsnsw.org.au or 9874 9777.

PORT MACQUARIE MORNING TEA

Ability Links and Huntington’s NSW are working together to help establish interest for an on-going support group in the Port Macquarie  region but we need your help. We are holding a Morning Tea in Port Macquarie for people connected in some way with Huntington’s for a casual chat.

Anyone connected with Huntington’s is welcome – carers, people affected by Huntington’s, gene positive, gene negative, at risk, health professionals, interested family members  .......anyone!

WhenFriday 23rd June at 11am           

Where: Rydges Hotel, Level 1, Hay St, Port Macquarie

For more information contact:   Ross Henderson, Ability Links       
Phone: 6516 1920   Email: rosshenderson@midcc.org.au

Latest News

Apr
20

PGD AT A MORE AFFORDABLE COST

Westmead Fertility Centre (WFC) which is affiliated with Westmead Hospital and the University of Sydney offers PGD at a more affordable cost for those who would like to have an HD-free child.

The following is an approximate guide to the type of treatment costs, which are all inclusive, you can expect to pay.

Treatment fees

An IVF cycle costs between $1,735–$5,085 at WFC but after Medicare refunds, out-of-pocket expenses are usually between $317–$1,586 for a first cycle. Additional Health Fund Insurance is not required to have treatment at WFC.

In addition, PGD charges billed by the Genetics Laboratory range from $2,...

Dec
09

ENROLL-HD NOW AT WESTMEAD HOSPITAL

Huntington’s NSW is excited to announce that the Enroll-HD study is now up and running at Westmead Hospital. This international study presents an opportunity for all family members affected by HD to be involved in research. If you are interested in participating, contact  the study coordinator, Therese Alting, telephone 9845 6310 or 0438 604 719 or email  therese.alting@health.nsw.gov.au. This is an observational study, and not a drug trial. For more information about the study visit www.enroll-hd.org

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