Welcome to Huntington's New South Wales

Upcoming Events

JOIN US AT THE SETTLER'S TAVERN

Settler’s Tavern Social Golf Club are holding their annual fundraising event to raise funds for Huntington’s NSW

SUNDAY 18th DECEMBER

SETTLER’S TAVERN – 2 Hely St, West Gosford

 The FUN & GAMES start at 12.30 pm

Raffles, Games and lots more – join in!!

 

2017 AUSTRALIA & NEW ZEALAND YOUTH CAMP

HDYO together with the HD associations in Australia and NZ is proud to announce that a Youth Camp will be held in Queensland from 13th to 16th January 2017.

The camp is open to

  • Young people impacted by HD in some manner
  • Aged 15-25 (although there is flexibility on the ages)
  • Living in either Australia or NZ.

It is completely free to attend the camp Travel costs (including flights), food, accommoation and camp activities are all covered.

For more information about the camp visit the HDYO site hdyo.org or email monica@hdyo.org

Applications are now open. If you would like to apply, please click Application form


 

Latest News

Dec
09

ENROLL-HD NOW AT WESTMEAD HOSPITAL

Huntington’s NSW is excited to announce that the Enroll-HD study is now up and running at Westmead Hospital. This international study presents an opportunity for all family members affected by HD to be involved in research. If you are interested in participating, contact  the study coordinator, Therese Alting, telephone 9845 6310 or 0438 604 719 or email  therese.alting@health.nsw.gov.au. This is an observational study, and not a drug trial. For more information about the study visit www.enroll-hd.org

Nov
30

Dantrolene protects neurons from Huntington's disease

Huntington's disease (HD) is characterized by ongoing destruction of specific neurons within the brain. It affects a person's ability to walk, talk, and think - leading to involuntary movement and loss of muscle co-ordination. New research published in BioMed Central's open access journal Molecular Neurodegeneration shows that the RyanR inhibitor Dantrolene is able to reduce the severity of walking and balance problems in a mouse model of HD.

Read the full story on the EurekAlert! website

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