Ability Links and Huntington’s NSW are working together to help establish interest for an on-going support group in the Port Macquarie region but we need your help. We are holding a Morning Tea in Port Macquarie for people connected in some way with Huntington’s for a casual chat.
Anyone connected with Huntington’s is welcome – carers, people affected by Huntington’s, gene positive, gene negative, at risk, health professionals, interested family members .......anyone!
When: Monday 27th March 2017 - 10.00am
Where: Rydges Hotel, Level 1, Hay St, Port Macquarie
For more information and to RSVP contact: Ross Henderson, Ability Links Phone: 6516 1920 Email: firstname.lastname@example.org
Westmead Fertility Centre (WFC) which is affiliated with Westmead Hospital and the University of Sydney offers PGD at a more affordable cost for those who would like to have an HD-free child.
The following is an approximate guide to the type of treatment costs, which are all inclusive, you can expect to pay.
An IVF cycle costs between $1,735–$5,085 at WFC but after Medicare refunds, out-of-pocket expenses are usually between $317–$1,586 for a first cycle. Additional Health Fund Insurance is not required to have treatment at WFC.
In addition, PGD charges billed by the Genetics Laboratory range from $2,...
Huntington’s NSW is excited to announce that the Enroll-HD study is now up and running at Westmead Hospital. This international study presents an opportunity for all family members affected by HD to be involved in research. If you are interested in participating, contact the study coordinator, Therese Alting, telephone 9845 6310 or 0438 604 719 or email email@example.com. This is an observational study, and not a drug trial. For more information about the study visit www.enroll-hd.org