Welcome to Huntington's New South Wales

Upcoming Events

Walk for Hope

Fundraise For Us...

There is plenty of time to get your training shoes on and support Huntington’s NSW.
Why not sign up for one of these events registrations are open now.

 

City2Surf
Sunday August 9 2015
www.city2surf.com.au

 


Canberra Times Fun Run
Sunday September 6
www.canberratimesfunrun.com.au

 

Latest News

Aug
18

"TWITCH"

Twitch follows 18-year-old Kristen Powers as she undergoes genetic testing for the disease that killed her mother. Huntington’s Disease.  The film follows the emotional, social and medical journey through this important test, as well as the impact it has on an individual’s future.

A free screening of this film with an expert Q & A will be held on Thursday 10th September at 6pm at the University of Sydney.

To register and for more details go to https://wordvine.sydney.edu.au/files/59/9526/

Jul
10

Research Project: Evaluation of Predictive Testing

We're looking for people who undertook the PT for HD between January 2009 and December 2013 to participate in this study so we can evaluate the current practice in genetic services across Australia.

You can participate on line at https://www.surveymonkey.com/r/HDPSTsurveyPIS

If you'd like a paper copy of the survey or further information please contact Robyn at [email protected]

If you had a support person while you went through the program, there is also a survery they can complete.

We would be very grateful if you would consider participating and please feel free to tell others who may fit the criteria.

 

 

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