We're looking for people who undertook the PT for HD between January 2009 and December 2013 to participate in this study so we can evaluate the current practice in genetic services across Australia.
You can participate on line at https://www.surveymonkey.com/r/HDPSTsurveyPIS
If you'd like a paper copy of the survey or further information please contact Robyn at [email protected]
If you had a support person while you went through the program, there is also a survery they can complete.
We would be very grateful if you would consider participating and please feel free to tell others who may fit the criteria.