Welcome to Huntington's New South Wales

Upcoming Events

PORT MACQUARIE MORNING TEA

Ability Links and Huntington’s NSW are working together to help establish interest for an on-going support group in the Port Macquarie  region but we need your help. We are holding a Morning Tea in Port Macquarie for people connected in some way with Huntington’s for a casual chat.

Anyone connected with Huntington’s is welcome – carers, people affected by Huntington’s, gene positive, gene negative, at risk, health professionals, interested family members  .......anyone!

WhenMonday 27th March 2017 - 10.00am           

Where: Rydges Hotel, Level 1, Hay St, Port Macquarie

For more information and to RSVP contact:   Ross Henderson, Ability Links       Phone: 6516 1920   Email: rosshenderson@midcc.org.au

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Latest News

Feb
01

NDIS COMMUNITY INFORMATION SESSIONS

These information sessions are designed to help people with disability, as well as their families and carers, get ready for the NDIS. The sessions are facilitated by the NDIA and will cover topics such as:

• What is the NDIS and how does it work?
• Am I eligible for the NDIS?
• What will happen if I am made eligible?
• What kind of support can I access through the NDIS?
 

Click here for locations, to register and find out more detail

•...

Dec
09

ENROLL-HD NOW AT WESTMEAD HOSPITAL

Huntington’s NSW is excited to announce that the Enroll-HD study is now up and running at Westmead Hospital. This international study presents an opportunity for all family members affected by HD to be involved in research. If you are interested in participating, contact  the study coordinator, Therese Alting, telephone 9845 6310 or 0438 604 719 or email  therese.alting@health.nsw.gov.au. This is an observational study, and not a drug trial. For more information about the study visit www.enroll-hd.org

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