Huntington's News

We have a new name!

Posted: 6th January 2011

Huntington's New South Wales is the trading name of the Australian Huntington's Disease Association (NSW) Inc., which remains our incorporation name. This name change was adopted by members at the recent AGM and follows recent name changes to the other state associations and to the national association.

All our contact and other details remain the same.

Huntington's symptoms appear a decade before diagnosis

Posted: 4th December 2010

People with Huntington's disease show symptoms more than a decade before they are likely to get a clinical diagnosis. These early effects of the disease don't affect day-to-day functioning, but they will help drug developers evaluate treatments that target the early stages of the disease.

Read more about this Australian research on the New Scientist website.

Fighting Huntington's disease brings together Cleveland researchers from several fields

Posted: 2nd June 2010

A rare meeting of some of the brightest investigators involved in local brain, genetics and cancer research took place over a 48-hour period recently in Cleveland, a collaboration that Case Western Reserve University pathologist Alan Tartakoff hopes will make the city a hub for research into Huntington's disease.

Read the full story on

Faulty Clean-Up Process May Be Key Event in Huntington's Disease

Posted: 31st May 2010

ScienceDaily (Apr. 25, 2010) — In a step towards a possible treatment for Huntington's disease, scientists at Albert Einstein College of Medicine of Yeshiva University have shown for the first time that the accumulation of a mutated protein may explain damaging cellular behavior in Huntington's disease. Their research is described in the April 11 online edition of Nature Neuroscience.

Read more on the ScienceDaily website.

Staying active delays Huntington's disease

Posted: 29th May 2010

Melbourne researchers have made a breakthrough in the research into Huntington's disease, a genetic condition that inevitably leads to dementia and a shorter life. In a world-first study, scientists have found that leading a more active lifestyle can delay the onset of symptoms.

Read the full story on the ABC News website.

Do-It-Yourself Genetic Tests

Posted: 27th May 2010

LONDON – If you were hoping to pick up a DNA kit along with your shampoo from the drugstore, you would be out of luck. The United States Food and Drug Administration recently warned the giant pharmacy chain Walgreen’s to think twice before stocking personal genetic testing kits. As an FDA spokeswoman said, "These kits have not been proven safe, effective or accurate, and patients could be making medical decisions based on data from a test that hasn’t been validated by the FDA."

Read more at the Project Syndicate website.

Protecting the Brain from Huntington's Disease

Posted: 10th February 2010

In a new study published in The Journal of Neuroscience, Stephen Ferguson and Fabiola Ribeiro of Robarts Research Institute at The University of Western Ontario identified a protective pathway in the brain that may explain why HD symptoms take so long to appear. The findings could also lead to new treatments for HD.

Like to know more?

Potential Treatment for Huntington's Disease

Posted: 16th November 2009

ScienceDaily (Nov. 16, 2009) — Investigators at Burnham Institute for Medical Research (Burnham), the University of British Columbia's Centre for Molecular Medicine and Therapeutics and the University of California, San Diego have found that normal synaptic activity in nerve cells (the electrical activity in the brain that allows nerve cells to communicate with one another) protects the brain from the misfolded proteins associated with Huntington's disease. In contrast, excessive extrasynaptic activity (aberrant electrical activity in the brain, usually not associated with communication between nerve cells) enhances the misfolded proteins' deadly effects.

Read more at the ScienceDaily website


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