My Life with HD
Understanding Behaviour in Huntington's Disease
A Guide for Professionals
Lifestyle and Huntington Disease
This fact sheet discusses some of the strategies which can be used by families and carers supporting someone at home, as well as residential care staff supporting someone in a residential care facility, to facilitate active engagement in both leisure and domestic activities.
Communication and Huntington Disease
This fact sheet provides practical advice for carers, family members and friends on the most effective ways to communicate with the person with Huntington's Disease.
Making a Decision about Residential Care
Making the decision to move into a residential care facility can be one of the most difficult decisions faced by people with Huntington's Disease and their carers. This fact sheet explores the process involved in making the decision about residential care and presents some of the issues that need to be taken into consideration when choosing a residential facility.
Living with Someone who has Huntington Disease
This booklet looks at the types of difficulties experienced by people affected by Huntington Disease - from the perspectives of someone diagnosed with the disease, and someone caring for the person. It then discusses what causes the difficulties and how to manage them.
The Importance of Dental Care in Huntington Disease
Advice for meeting the special dental needs of people with Huntington Disease.
Eating and Swallowing Difficulties in Huntington Disease
Difficulties with eating and swallowing and maintaining a constant body weight are among the most troublesome complications of Huntington's Disease. This booklet provides practical advice for carers on how to manage these problems.
Dr Julie Snowden. Understanding Challenging Behaviour in Huntington's Disease
Originally presented at the 14th meeting of the International Huntington Association held in Denmark in August 2001, this article attracted much interest when published in the March/April 2002 issue of Gateway newsletter.
Karen Keast. Guidelines for Meeting the Nutritional Needs of People with Huntington Disease
Rosenblatt, A. et al. 2011. A Physician's Guide to the Management of Huntington's Disease, Third Edition
Published by the Huntington's Disease Society of America. An up to date summary of issues in diagnosis and management.
Paulsen, J.S. 1999. Understanding Behaviour in Huntington Disease
This book is intended to help families and professionals to better understand the causes of behaviours in Huntington's Disease and to provide strategies to cope with difficult behaviours. Originally published by the Huntington Society of Canada.
Pollard, J. (ed.) 1999. A Caregiver's Handbook for Advanced-Stage Huntington Disease
The aim of this book is to familiarise carers with Huntington's Disease, so that they can recognise its symptoms and know what to expect as it progresses. It also includes general principles of care and tips that other carers have found useful. Originally published by the Huntington Society of Canada.
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