Our Staff

Robyn Kapp OAM, Executive Officer

Robyn's role is to ensure that the Association remains on track in fulfilling its aims and objectives to provide and enhance quality services for people with HD and their families. Robyn is also responsible for the administration and accounts of the Association. She is in the office on Monday to Wednesday and Friday and is available to answer any questions you may have about HD.                     

Email: robyn.kapp@huntingtonsnsw.org.au


Amanda Dickey, Programs Officer

Amanda is responsible for overseeing our Social Clubs and Holiday Program and developing our volunteer program. She is also investigating how we might assist and educate our families about the NDIS. Amanda is in the office Monday to Wednesday.

Email: amanda@huntingtonsnsw.org.au


Amy Hale, Youth Liaison Worker

Amy has joined us to develop and facilitate our new program, Huntington’s Disease Youth Connection (HDYC). Amy is constantly inspired by working with teenagers and young people  If you would like to connect, offer a suggestion for the program or simply know more about what we have to offer, please contact Amy.

Email: amy@huntingtonsnsw.org.au   Tel:  0499031231  


Stewart Swales, Administration Co-ordinator

Stewart oversees the operation of our office and undertakes a wide variety of administration tasks. Stewart is in the office on Mondays, Wednesdays and Fridays.

Emai: stewart@huntingtonsnsw.org.au











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