Welcome to Huntington's NSW & ACT

Latest News

INSURANCE & GENETIC INFORMATION

Use of Genetic Information in Insurance Underwriting

You are invited to participate in a short 15 to 20-minute anonymous online survey about your experiences and attitudes concerning use of genetic information in health, life and travel insurance in Australia.

You can participate if you are aged 18 years or over, have a family history of a genetic condition, and were asymptomatic at the time of your experience.

UPDATE FROM WESTMEAD HD SERVICE & HNSW&ACT

On Monday, 11th December, 2017 Huntington’s disease was back in the international spotlight – the last time the disease hit the headlines was when the gene was discovered in 1993. Social media has been buzzing with news of a research breakthrough. A study showed that a drug, Ionis-HTTRx, could lower the amount of the mutant protein “huntingtin” (mHTT) in individuals with early stage HD. This is important because toxic mHTT is believed to be part of the mechanism leading to HD symptoms. 

Upcoming Events

SUPPORT GROUP MEETINGS IN AUGUST


Support Groups
WOLLONGONG - Monday 6th, 10am-12noon, Deli & Dine on Market, 22 Market Street (please note change of venue)
PORT MACQUARIE - Friday 3rd, 11am-1pm, Westport Club, 25 Buller Street
CENTRAL COAST - Wednesday, 15th, 6.30pm, Niagara Park Stadium, Washington Ave, Niagara Park
 
Carers Groups
NEWCASTLE - Thursday 9th, 10am-12noon, Jesmond Neighbourhood Centre, 42 Mordue Parade
WEST RYDE - Wednesday, 15th, 10.30am-12.30pm, 21 Chatham Road West Ryde
CENTRAL COAST - Saturday, 11th, 10am, LooLoos Coffee Warehouse, 12/11 Cochrone St, Kincumber
 

 

RAFFLE WINNER


The winner of the Hunter Bike Raffle is Christopher Stacey with ticket number 145 which was purchased on line. 

Congratulations Christopher and thanks to everyone who supported this raffle. 

WALK FOR HOPE - REGISTER NOW!


Registrations are now open for our 2018 Walk 4 Hope. Register now and take advantage of our early bird registration.

REGISTER HERE

SAVE THE DATES WALK 4 HOPE 2018


ORANGE               Sunday 2nd September

PARRAMATTA       Sunday 9th September

SPEERS POINT    Saturday 15th September

CANBERRA          Sunday 23rd September 

 

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