Welcome to Huntington's NSW & ACT

Latest News

ROCHE ANNOUNCES DETAILS OF ITS 'PIVOTAL' HUNTINGTIN-LOWERING STUDY

It’s a time of huge developments in the field of huntingtin-lowering drugs, which aim to reduce production of the huntingtin protein that causes Huntington’s disease.

INSURANCE & GENETIC INFORMATION

Use of Genetic Information in Insurance Underwriting

You are invited to participate in a short 15 to 20-minute anonymous online survey about your experiences and attitudes concerning use of genetic information in health, life and travel insurance in Australia.

You can participate if you are aged 18 years or over, have a family history of a genetic condition, and were asymptomatic at the time of your experience.

Upcoming Events

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WHAT'S ON


There's a lot happening over the next six weeks to raise funds and awareness for Huntington's. We would love to see you at one or more of these fabulous events.
 

WALK 4 HOPE

Sunday 9th September - Parramatta
Saturday 15th September - Speers Point
Sunday 23rd September - Canberra
Call 9874 9777 to register
 

HUNTER VALLEY WINE TASTING  SOLD OUT!!

Saturday 29th September 
Call Dianne 0410 648 604 or Debra 0413 597 930
 

REDHEAD HUNT4HD

Saturday 29th September
10am-4pm Wade Park, Orange
 

SETTLER'S TAVERN SOCIAL GOLF DAY

Sunday 16th September
12.30pm Settler's Tavern, Gosford - Lunch & Fun
Enquiries: contact Mark 0416248604
 

GAMES NIGHT

Saturday 13th October 
Kirrawee Kangaroos Club
$30 entry fee includes food
Contact Warren or Nicole 9545 4039 or 0449 980 420
 

 

 

 

SUPPORT GROUP MEETINGS IN OCTOBER


Support Groups
WOLLONGONG - Monday 8th, 10am-12noon, Deli & Dine on Market, 22 Market Street 
PORT MACQUARIE - Friday 5th, 11am-1pm, Westport Club, 25 Buller Street
CANBERRA - Saturday 6th, 12.30pm, Ainslie Football Club
 
Carers Groups
NEWCASTLE - Thursday 11th, 10am-12noon, Jesmond Neighbourhood Centre, 42 Mordue Parade
WEST RYDE - Wednesday, 24th, 10.30am-12.30pm, 21 Chatham Road West Ryde
CENTRAL COAST - Saturday 6th, 10am, Looloo's Coffee Warehouse, 12/11 Cochrone St, Kincumber
 
For further details about any of these meetings contact us on 9874 9777.
 

 

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