Welcome to Huntington's NSW & ACT

Latest News

ROCHE ANNOUNCES DETAILS OF ITS 'PIVOTAL' HUNTINGTIN-LOWERING STUDY

It’s a time of huge developments in the field of huntingtin-lowering drugs, which aim to reduce production of the huntingtin protein that causes Huntington’s disease.

INSURANCE & GENETIC INFORMATION

Use of Genetic Information in Insurance Underwriting

You are invited to participate in a short 15 to 20-minute anonymous online survey about your experiences and attitudes concerning use of genetic information in health, life and travel insurance in Australia.

You can participate if you are aged 18 years or over, have a family history of a genetic condition, and were asymptomatic at the time of your experience.

Upcoming Events

ANNUAL GENERAL MEETING


The Annual General Meeting of Huntington’s NSW & ACT Inc will be held on Saturday 17th November 2018 at 12noon at Elsie Court Cottage, 21 Chatham Road, West Ryde

The Business of the Meeting is to
1. To accept the Minutes of the 2017 AGM
2. To accept the Annual Report of the Association
3. To accepted the audited Annual Financial Statements of the Association
4. To appoint the Auditor for 2018/2019
5. To elect the Board Members
 

Following the formal part of the meeting there will be a presentation from our Youth Work, Amy Hale, on her work with young people who are impacted by Huntington’s disease.

We will wrap up the meeting with a delicious BBQ lunch. There’ll be sizzling sausages and hamburgers, onions (of course) and tasty salads, culminating with delicious desserts. For catering purposes it would be appreciated if you would let us know if you’re coming by telephoning 9874 9777 or emailing info@huntingtonsnsw.org.au.

 

Nomination forms for Board positions are available upon request. Please contact the office if you would like one sent to you. Completed forms should be returned to Huntington’s NSW & ACT no later than Wednesday 14th November 2018. Nominations may also be made at the meeting.
 
Please note that you need to be a financial member to be able to nominate, be nominated or vote. However non-members are very welcome to attend.
 

EVERYONE IS MOST WELCOME - WE DO HOPE YOU CAN MAKE IT!!

 

SUPPORT GROUP MEETINGS IN NOVEMBER


Support Groups
WOLLONGONG - Monday 4th, 10am-12noon, Deli & Dine on Market, 22 Market Street 
PORT MACQUARIE - Friday 2nd, 11am-1pm, Westport Club, 25 Buller Street
 
Carers Groups
NEWCASTLE - Thursday 8th, 10am-12noon, Jesmond Neighbourhood Centre, 42 Mordue Parade
WEST RYDE - Not Meeting in November
CENTRAL COAST - Saturday 17th, 10am, Looloo's Coffee Warehouse, 12/11 Cochrone St, Kincumber
 
For further details about any of these meetings contact us on 9874 9777.
 

 

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