Welcome to Huntington's NSW & ACT

Latest News

ROCHE ANNOUNCES DETAILS OF ITS 'PIVOTAL' HUNTINGTIN-LOWERING STUDY

It’s a time of huge developments in the field of huntingtin-lowering drugs, which aim to reduce production of the huntingtin protein that causes Huntington’s disease.

INSURANCE & GENETIC INFORMATION

Use of Genetic Information in Insurance Underwriting

You are invited to participate in a short 15 to 20-minute anonymous online survey about your experiences and attitudes concerning use of genetic information in health, life and travel insurance in Australia.

You can participate if you are aged 18 years or over, have a family history of a genetic condition, and were asymptomatic at the time of your experience.

Upcoming Events

NATIONAL CARERS WEEK


National Carers Week is about recognising and celebrating the outstanding contribution unpaid carers make to our nation.
Anyone at any time can become a carer. Australia’s 2.7 million carers make an enormous contribution to our communities, with their caring roles being valued at $60.3 billion annually – more than $1 billion per week.
Each year, National Carers Week provides an opportunity to educate and raise awareness among all Australians about the diversity of carers and their caring roles. So join us in spreading the word and letting the community know why we care.
 
We extend a very special thank you to all those who care or have cared for loved ones with HD.

SUPPORT GROUP MEETINGS IN OCTOBER


Support Groups
WOLLONGONG - Monday 8th, 10am-12noon, Deli & Dine on Market, 22 Market Street 
PORT MACQUARIE - Friday 5th, 11am-1pm, Westport Club, 25 Buller Street
CANBERRA - Saturday 6th, 12.30pm, Ainslie Football Club
 
Carers Groups
NEWCASTLE - Thursday 11th, 10am-12noon, Jesmond Neighbourhood Centre, 42 Mordue Parade
WEST RYDE - Wednesday, 24th, 10.30am-12.30pm, 21 Chatham Road West Ryde
CENTRAL COAST - Saturday 6th, 10am, Looloo's Coffee Warehouse, 12/11 Cochrone St, Kincumber
 
For further details about any of these meetings contact us on 9874 9777.
 

 

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