Welcome to Huntington's NSW & ACT

Latest News

ROCHE ANNOUNCES DETAILS OF ITS 'PIVOTAL' HUNTINGTIN-LOWERING STUDY

It’s a time of huge developments in the field of huntingtin-lowering drugs, which aim to reduce production of the huntingtin protein that causes Huntington’s disease.

INSURANCE & GENETIC INFORMATION

Use of Genetic Information in Insurance Underwriting

You are invited to participate in a short 15 to 20-minute anonymous online survey about your experiences and attitudes concerning use of genetic information in health, life and travel insurance in Australia.

You can participate if you are aged 18 years or over, have a family history of a genetic condition, and were asymptomatic at the time of your experience.

Upcoming Events

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WHAT'S ON


There's a lot happening over the next six weeks to raise funds and awareness for Huntington's. We would love to see you at one or more of these fabulous events.
 

WALK 4 HOPE

Sunday 9th September - Parramatta
Saturday 15th September - Speers Point
Sunday 23rd September - Canberra
Call 9874 9777 to register
 

HUNTER VALLEY WINE TASTING  SOLD OUT!!

Saturday 29th September 
Call Dianne 0410 648 604 or Debra 0413 597 930
 

REDHEAD HUNT4HD

Saturday 29th September
10am-4pm Wade Park, Orange
 

SETTLER'S TAVERN SOCIAL GOLF DAY

Sunday 16th September
12.30pm Settler's Tavern, Gosford - Lunch & Fun
Enquiries: contact Mark 0416248604
 

GAMES NIGHT

Saturday 13th October 
Kirrawee Kangaroos Club
$30 entry fee includes food
Contact Warren or Nicole 9545 4039 or 0449 980 420
 

 

 

 

SUPPORT GROUP MEETINGS IN SEPTEMBER


Support Groups
WOLLONGONG - Monday 3rd, 10am-12noon, Deli & Dine on Market, 22 Market Street (please note change of venue)
PORT MACQUARIE - Friday 7th, 11am-1pm, Westport Club, 25 Buller Street
 
Carers Groups
NEWCASTLE - Thursday 13th, 10am-12noon, Jesmond Neighbourhood Centre, 42 Mordue Parade
WEST RYDE - Wednesday, 12th, 10.30am-12.30pm, 21 Chatham Road West Ryde
 

 

WALK FOR HOPE - REGISTER NOW!


Registrations are still open for our 2018 Walk 4 Hope. It's not too late to register! We would love to see you at Parramtta on Sunday 9th or Speers Point on Saturday 15th or Canberra on Sunday 23rd.

REGISTER HERE

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