Welcome to Huntington's NSW & ACT

Latest News

BIGGEST BREAKTHROUGH SINCE THE DISCOVERY OF THE HD GENE IN 1993

In an announcement likely to stand as one of the biggest breakthroughs in Huntington's disease since the discovery of the HD gene in 1993, Ionis and Roche have announced that the first human trial of a huntingtin-lowering drug, IONIS-HTTRx, demonstartes that it reduces mutant huntingtin in the nervous system, and is safe and well-tolerated. More information can be found at HDBuzz

HUNTINGTON'S NSW YOUTH CONNECTION

Does your mum, dad, yourself or someone in your family have HD? Do you ever feel sad, worries or confused about HD?
Huntington's NSW Youth Connection can help!

Upcoming Events

HUNTER BIKERS RAFFLE


Win this Bike!

Kawasaki Vulcan 1700 Vaquero valued at $24,499

Kawasaki Vulcan 1700 Vaquero
Purchase tickets on-line, at info@huntingtonsnsw.org.au or 9874 9777.

The draw date for this raffle has been extended to 26th May 2018, to be drawn at Brisan Motorcycles, 250 Maitland Road, Islington NSW 2296 at 11.30 am.

The winner will be notified by the organisers, displayed on Huntington’s NSW website and Hunter Bikers Facebook.


 

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