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Tell the government what you think of the NDIS

There are a 3 opportunities to tell the government about your experiences within the NDIS.

Genetic Testing - Life Insurance Moratorium

The Moratorium on Genetic Tests in Life Insurance came into effect from 1 July 2019 and will end on 30 June 2024. This means that from 1 July 2019, there will be a temporary suspension on the use of genetic test results as part of an insurance application up to the value of $500,000 (for death and total permanent disability), $200,000 for trauma and $4,000 a month for income protection.

(Note - in the UK the limit is 500,000 pounds sterling, a lot more than our AUD$500,000.)

Upcoming Events

Community Support groups meeting in September

Family Support

WOLLONGONG - Monday 1st, 10:00am, Wollongong Golf club, 151-161 Corrimal St, Wollongong
PORT MACQUARIE - Friday 6th, 11:00am-1:00pm, Westport Club, 25 Buller Street
COFFS HARBOUR - Friday 20th, 11:00am-01:00pm, Joyland Carers Retreat,  5B Breakers Way, Korora
ORANGE & CENTRAL WEST - Saturday 21st, Live Better Café Connect, 107 Prince St, Orange

Carers Support

NEWCASTLE - Thursday 12th, 10:00am-12:00pm, Jesmond Neighbourhood Centre, 44 Mordue Parade
WEST RYDE - Wednesday 25th, 10:30am-12:30pm, 21 Chatham Road, West Ryde
CENTRAL COAST - Saturday 29th, 10:00am, Loo Loos Warehouse, 12/11 Cochrone St, Kincumber

For further details about any of these meetings contact us on 9874 9777 or email: info@huntingtonsnsw.com.au.

Have a High Tea 4 HD


What a great way to raise awareness of HD and funds to support our vulnerable community. A one-off registration. Huntington's NSW & ACT will send you a pack including 6 invitations, 6 pins and some recipe tips.

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