Welcome to Huntington's NSW & ACT

Latest News

UPDATE FROM WESTMEAD HD SERVICE & HNSW&ACT

On Monday, 11th December, 2017 Huntington’s disease was back in the international spotlight – the last time the disease hit the headlines was when the gene was discovered in 1993. Social media has been buzzing with news of a research breakthrough. A study showed that a drug, Ionis-HTTRx, could lower the amount of the mutant protein “huntingtin” (mHTT) in individuals with early stage HD. This is important because toxic mHTT is believed to be part of the mechanism leading to HD symptoms. 

BIGGEST BREAKTHROUGH SINCE THE DISCOVERY OF THE HD GENE IN 1993

In an announcement likely to stand as one of the biggest breakthroughs in Huntington's disease since the discovery of the HD gene in 1993, Ionis and Roche have announced that the first human trial of a huntingtin-lowering drug, IONIS-HTTRx, demonstartes that it reduces mutant huntingtin in the nervous system, and is safe and well-tolerated. More information can be found at HDBuzz

Upcoming Events

SUPPORT GROUP MEETINGS IN JULY


Support Groups
WOLLONGONG - Monday 2nd, 10am-12noon, Wollongong Golf Club, 151-161 Corrimal Street
PORT MACQUARIE - Friday 6th, 11am 1pm, Westport Club, 25 Buller Street
 
Carers Groups
NEWCASTLE - Thursday 12th, 10am-12noon, Jesmond Neighbourhood Centre, 42 Mordue Parade
WEST RYDE - Wednesday, 18th July, 10.30am-12.30pm, 21 Chatham Road West Ryde
 

 

RAFFLE WINNER


The winner of the Hunter Bike Raffle is Christopher Stacey with ticket number 145 which was purchased on line. 

Congratulations Christopher and thanks to everyone who supported this raffle. 

WALK FOR HOPE - REGISTER NOW!


Registrations are now open for our 2018 Walk 4 Hope. Register now and take advantage of our early bird registration.

REGISTER HERE

SAVE THE DATES WALK 4 HOPE 2018


ORANGE               Sunday 2nd September

PARRAMATTA       Sunday 9th September

SPEERS POINT    Saturday 15th September

CANBERRA          Sunday 23rd September 

 

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