Welcome to Huntington's NSW & ACT

Latest News

Vignettes needed for new edition of HD facts

Dr Oliver Quarrell is compiling the 3rd edition of HD facts. This book is designed to give information to families and carers and is published by Oxford University Press. 

Are you able to write up to 500 words on one of these topics to be included as a perspective or experience of a patient, carer, or someone at risk? There will not be a payment for the entry but your contribution can be acknowledged if you wish.


The Board of Huntington’s NSW ACT is very pleased to announce the appointment of Lewis Kaplan as Executive Officer to lead our team from 4 February 2019.

Lewis is replacing our long-term Executive Officer, Robyn Kapp, who is retiring.

Upcoming Events


Support Groups
PORT MACQUARIE - Friday 1st, 11am-1pm, Westport Club, 25 Buller Street
ACT lunch - Saturday 2nd, 12:30pm, Ainslie Football club, 52 Wakefield Ave
WOLLONGONG - Monday 4th, 10am, Deli & Dine cafe, 2/22 Market Street
CENTRAL COAST - Wednesday 13th, 6:30pm-8:30pm, Niagara Park Stadium, Washington Ave
Carers Groups
NEWCASTLE - Thursday 14th, 10am-12noon, Dementia Australia, 2 Percy Street, Hamilton
WEST RYDE - Wednesday 20th, 10:30am-12:30pm, 21 Chatham Road
For further details about any of these meetings contact us on 9874 9777.


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