Welcome to Huntington's NSW & ACT

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UPDATE FROM WESTMEAD HD SERVICE & HNSW&ACT

On Monday, 11th December, 2017 Huntington’s disease was back in the international spotlight – the last time the disease hit the headlines was when the gene was discovered in 1993. Social media has been buzzing with news of a research breakthrough. A study showed that a drug, Ionis-HTTRx, could lower the amount of the mutant protein “huntingtin” (mHTT) in individuals with early stage HD. This is important because toxic mHTT is believed to be part of the mechanism leading to HD symptoms. 

BIGGEST BREAKTHROUGH SINCE THE DISCOVERY OF THE HD GENE IN 1993

In an announcement likely to stand as one of the biggest breakthroughs in Huntington's disease since the discovery of the HD gene in 1993, Ionis and Roche have announced that the first human trial of a huntingtin-lowering drug, IONIS-HTTRx, demonstartes that it reduces mutant huntingtin in the nervous system, and is safe and well-tolerated. More information can be found at HDBuzz

Upcoming Events

SAVE THE DATES WALK 4 HOPE 2018


ORANGE               Sunday 2nd September

PARRAMATTA       Sunday 9th September

SPEERS POINT    Saturday 15th September

CANBERRA          Sunday 23rd September 

 

HUNTER BIKERS RAFFLE


Win this Bike!

Kawasaki Vulcan 1700 Vaquero valued at $24,499

Kawasaki Vulcan 1700 Vaquero
Purchase tickets on-line, at info@huntingtonsnsw.org.au or 9874 9777.

The draw date for this raffle has been extended to 26th May 2018, to be drawn at Brisan Motorcycles, 250 Maitland Road, Islington NSW 2296 at 11.30 am.

The winner will be notified by the organisers, displayed on Huntington’s NSW website and Hunter Bikers Facebook.


 

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