Gateway Newsletter and Hope for HD

Gateway is a 12 page newsletter, published 4 times annually and distributed to Association members. Each issue contains news of Association happenings, and a selection of articles about advances in Huntington's Disease (HD) medical research and issues of interest to carers.

Hope for HD is a new publication that focuses on our fundraising events and personal stories. It is also distributed to our donors and supporters

Volume 20 No 1, Autumn 2017

Highlights:

  • HNSW Youth Connection Program
  • Meet Amy – our new Youth Worker
  • Having a Family, the HD Way

Volume 19 No 4, Summer 2016

Highlights:

  • The Year in Review…
  • Update from Westmead’s HD Research Team
  • A Chance Meeting in Barcelona

Volume 19 No 3, Spring 2016

Highlights

  • Rules for 50/50 Chances by Kate McGovern – Book Review
  • EuroBuzz 2016: The Euro-HD Network Meeting, The Hague, August 2016

Volume 19 No 2, Winter 2016

Highlights

  • The Centurians - Raising Funds for HNSW
  • Memories are Made of This
  • Planting Trees Together

Volume 19 No 1, Autumn 2016

Highlights:
 
  • How NOT to write a news article about a clinical trial
  • Amanda's Story
  • It's time for carers to speak out

Volume 18 No 4, Summer 2015

Highlights:

  • Enrol HD
  • Changes in mood and behaviour in early HD

Hope for HD October 2015

 

Volume 18 No 3, Spring 2015

Highlights

  • A drug to treat HD is closer than ever - but those who need it remain cautious
  • Home Nutrition Services in NSW
  • Meet the people behind HDYO
  • People at the centre of clinical research

Volume 18 No 2, Winter 2015

Highlights

  • "I refuse to let this disease get the better of me"
  • Happy News to Share
  • Research Project: Evaluation of Presymptomatic Testing
  • Book Review: "Inside the O'Briens"

Hope for HD March 2015

 

Volume 18 No 1, Autumn 2015

Highlights

  • Research Grant: Predicting the course of functional decline
  • HD in Popular Culture
  • Drug Improves Symptoms in Mice

Volume 17 No 3, Spring 2014

Highlights

  • Twelve Years of the PREDICT HD Study
  • "It's a Neuro Thing"
  • Meletonin - Trouble with Sleep

Hope for HD October 2014

 

Volume 17 No 2, Winter 2014

Highlights

  • "Jumping Genes"
  • Searching for Therapies
  • Fresh Air and Exercise

Volume 17 No 1, Autumn 2014

Highlights

  • Australia and NZ join the ranks of Enroll-HD
  • Meet the Board .. Meet the Staff Team

Volume 16 No 4, Summer 2013

Highlights

  • The Year in Review
  • Research Update
  • Living with a Genetically Inherited Disease

Volume 16 No 3, Spring 2013

Highlights

  • HD Research ... in space
  • Tracey - a study of determination

Volume 16 No 2, Winter 2013

Highlights:

  • Landmark Study puts HD trials on TRACK
  • Meet Kristen ... Meet Erika & Melissa
  • Simple Rules for a Good Night's Sleep in HD

Volume 16 No 1, Autumn 2013

Highlights:

  • Nursing Home Fees & Centrelink Pensions
  • HD and Sleep
  • What is Unawareness and how do I deal with it?
  • Making this a Land for You and Me
 

Volume 15 No 4, Summer 2012-2013

Highlights:

  • HuntingtonStudy Group 2012
  • Interview: Alice & Nancy Wexler
  • NDIS
  • Carers: Looking after yourself
 

Volume 15 No 3, Spring 2012

Highlights:

  • Insurance and HD
  • Mapping the neighborhood: new protein partners
  • I's all about caring
  • Redefining Independence
 

Volume 15 No. 2, Autumn 2012

Highlights:

  • No Bitterness Over Abercorn
  • CHDI's Scientific Team
  • Closing the Care Gap: New guidleines for HD
 

Volume 15 No. 1, Summer 2012

Highlights:

  • Meet the Staff Team
  • Launch of HD Youth Organization Website
  • Special 'brain fat' injection helps HD mice
  • Chinese HD Network Launched

Volume 14 No. 4, Summer 2011

Highlights:

  • Meet the Board
  • Huntington Study Group
  • Highlights from the World Congress

Volume 14 No. 3, Spring 2011

Highlights:

  • The INSPIRED Study
  • Ten Golden Rules for Reading a Science News Story
  • Living with HD: Decision Making for Reproduction in Individuals At-Risk for HD

Volume 14 No. 2, Winter 2011

Highlights:

  • Getting the Data Out - A New Scientific Journal Just for HD
  • HD Research Update
  • Is Huntington's Disease Twice as Common as We Thought?
  • Programs Reach More Rural and Remote Areas

Volume 14 No. 1, Summer 2011

Highlights:

  • Taking Care of Yourself
  • Speaking & Listening
  • Research Updates

Volume 13 No. 4, Summer 2010

Highlights:

  • HD Research Update
  • HD Buzz
  • Family Support Program
  • Huntington Study Group Meeting October 2010

Volume 13 No. 3, Spring 2010

Highlights:

  • New Physiotherapy Guidance Document for Those with Huntington's Disease
  • HD Research Update
  • Weight Loss and Sleep Problems
  • Reduced Creatine Kinase

Volume 13 No. 2, Winter 2010

Highlights:

  • Website for Young People
  • New Central Coast Support Action Group
  • HD Research at Westmead Hospital - An Update
  • Being a Carer - Kathryn's Story

Volume 13 No. 1, Summer 2010 

  • A Fabulous Day in the Vines
  • Mid North Coast Visit
  • Huntington's Happenings
  • Extrasynaptic Activity and Memantine
  • A Molecular Switch
  • Family Support Corner

Volume 12 No. 3, Summer 2009

  • Family Support Program Update
  • HD World Congress 2009
  • Axonal Transport Impaired in HD
  • The Search for Genetic Modifiers

Volume 12 No. 2, Spring 09

  • Naomi's Story - one young woman's story
  • Carers Support Update

Volume 11 No. 3, Summer 2008/09 

  • Introducing Dr Clement Loy
  • Antioxidants Could Help HD Sufferers Study Suggests
  • Sydney Carers Group

Volume 11 No. 2, Spring 2008

  • Farewell Maria Mackell
  • Scan Could Limit Huntington's Damage
  • Changes in the Huntington Disease Service

Volume 11 No. 1, Winter 2008

  • The Impact of Neurological Illness on Marital Relationships
  • Mental and Physical Exercise Delays dementia in HD
  • Power of Attorney - Financial Management

Volume 10 No. 4, Summer 2007/2008

  • Finding Facts on the Net
  • Clinical Trials Update - Huntington Study Group
  • Carer News
  • A New Focus on Family Support

Volume 10 No. 3, Winter/Spring 2007

  • Juvenile HD Research
  • Research News
  • Pro Bono Legal Services
  • Carer News

Volume 10 No. 2, Autumn/Winter 2007

  • Rural Outreach and Carer Support - the Future
  • HD Australia - An Internet Forum
  • Research Update from the 2007 HDSA Convention
  • Carer News

Volume 10 No. 1, Summer/Autumn 2007

  • Farewells to Robyn Kapp and Chris Dixon
  • Young People in Nursing Homes - Urgent Update
  • Does Environmental Enrichment Have a Future as a HD Treatment - Alana Shepherd
  • AHDA National Conference Report

 

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